Friday, January 15, 2010

Pulmonary Update

We saw Dr. Moore on Tuesday and liked him very much. He was great with Miles! We found out this week that another good friend of ours sees him too!

He says Miles has asthma for sure and switched up his meds a bit. Changed us from pulmicort nebs to a Flovent puffer and also gave us some oral steroids to keep on hand in case he needs them. He also gave us an "asthma care plan" which is like a step by step of what to do if he starts to have trouble which is pretty cool. All stuff ya already know but good to have on hand for the babysitter and stuff.

The check up schedule is as follows...Feb 5 - Cardiology (getting nervous!!)...Feb 8th - Renal...Feb 18th - Neurology...and finally Feb 24th - We follow up with pulmonology.

Cardiology is the only one I am getting nervous about. The most likely senario is that Miles will need a stent in his conduit - which just means a heart cath. It would be his 3rd if that is what he needs. I only say this because that is what the pc said last year when we saw him. He is doing SO well, if he needs any other intervention I would be very surprised. And he could need nothing at all which would totally rock! Because his pulse ox is still lower than they expect with his repaired heart I suspect that he still has some shunting from his now-closed fenestration.

He has shown quite a bit of curiousity lately about his heart and what surgeries and such he will need down the road. He asks the best questions and sometimes they are difficult to answer, for example, mommy how will the doctors open my chest to get to my heart? My response - they will use doctor tools. He seemed to be okay with that. I don't think I need to use terms like surgical saw and heart lung bypass machine just yet. His Dad and I are always honest with him but try very hard to explain things on his level and for the most part I think we do okay.

Please keep those fingers crossed that all of our February check ups are full of good reports!!!!

5 comments:

GoofyJ said...

Thanks for the update! Glad he is doing so well and hope February only brings good news :-D

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