Sunday, January 07, 2007

Okay, Okay so that wasn't an update...

...But! Be sure to read the post below about the It's My Heart - Heart Walk on February 17th...

All is well. Thanksgiving in KY was great, had a blast. Christmas was great, got completely spoiled by Santa (as it should be). On to the BP...The current thought is that Miles has secondary hypertension. There is more testing to come. He did a great job at the appointment (yea right! - there was alot of crying, screaming and laying on the floor). They took blood and we have more testing soon, a renal scan sometime in January. Then possibly medication to control it.

The funny part...I had to tell the doctor he was wrong. I didn't like to do that, really. I didn't want to be THAT mom. He had a student in there and he told her that Miles' heart makes all the lovely noises it does because his BT shunt is still open AND that it goes from his Pulmonary artery to his Aortic arch. SO...I had to say, "Actually Miles had a modified BT shunt and that went from his Super vena cava to his Pulmonary branch artery and they closed it during his repair. The noise you hear in his heart is due to his conduit that has moderate regurgitation and he has a fenestration." I really didn't want to do that but I had to. Plus - how can you (me) expect a doc to know everything about my boy the first time he sees him - I can't that is why I don't hold it against the doc - for Renal he was well informed about hearts, that is a good thing.

That is it with us. Hope all is well with you and yours. Happy New Year!

Happy Birthday Chris - my biggest sister :)

Friday, January 05, 2007


Dear Family & Friends,

Hi everybody! As most (or some) of you know I am a board member with an organization that I just LOVE called It's My Heart, Inc. We provide CHD families with non medical support, we have events and we provide about 1,000 comfort bags per year to Texas Children's Hospital.
That being said, we are having our very first Heart Walk!!! IMH Heart Walk, 2007, Noah's Legacy. Sadly, the president of our organizations son, Noah passed away in May 2006 so the walk is in his memory. The walk will be February 17, 2007. Funds raised through the IMH Heart Walk support community awareness and help to provide comfort bags and programs to families while they are hospitalized.
From the heart,
The Suggs Family
You can use Paypal, a quick and easy way to donate. Click here and click on the link for Donate Paypal. Please be sure to include my name.