It has been 5 months since his last but, Miles had a seizure on Sunday and was admitted to TCH for observation. Thankfully he only had Valium this time! He was crazy and belligerent when he woke up initially but went back to sleep for a LONG time. When he woke up again he was such a doll! He was so sweet to everyone and smiled a huge grin when anyone came in the room! He also opened his mouth right up when the doc asked to see his badly bitten tongue (from the seizure) - this tells me he was still drunk! He doesn't open his mouth for the docs normally - not at all!
We were released yesterday around 2:45 or so...well we were released a teeny bit earlier than that but we were in the middle of eating lunch...then we ALL fell asleep! Anyway, this seizure lasted only about 45 minutes with only about half of that with solid convulsions. He starts with this gaze and is still responsive - even while going in and out of convulsing he is responsive to a point. It always scares the crap out of me cause you think he might be completely aware of what is going on and that always makes me incredibly sad. His dad said that the EMTs this time were great which is awesome!
Next week - the 27th - is the MRI...send good thoughts for good results! I am not sure what good results would be yet...MG is progressive...brain tumors suck...Maybe good results would be that everything is clear and the eye stuff is completely unexplainable and won't ever be a problem for him...oh, and one day just clear right up, never to be seen again...is that possible? I hope so!