...But! Be sure to read the post below about the It's My Heart - Heart Walk on February 17th... www.itsmyheart.org
All is well. Thanksgiving in KY was great, had a blast. Christmas was great, got completely spoiled by Santa (as it should be). On to the BP...The current thought is that Miles has secondary hypertension. There is more testing to come. He did a great job at the appointment (yea right! - there was alot of crying, screaming and laying on the floor). They took blood and we have more testing soon, a renal scan sometime in January. Then possibly medication to control it.
The funny part...I had to tell the doctor he was wrong. I didn't like to do that, really. I didn't want to be THAT mom. He had a student in there and he told her that Miles' heart makes all the lovely noises it does because his BT shunt is still open AND that it goes from his Pulmonary artery to his Aortic arch. SO...I had to say, "Actually Miles had a modified BT shunt and that went from his Super vena cava to his Pulmonary branch artery and they closed it during his repair. The noise you hear in his heart is due to his conduit that has moderate regurgitation and he has a fenestration." I really didn't want to do that but I had to. Plus - how can you (me) expect a doc to know everything about my boy the first time he sees him - I can't that is why I don't hold it against the doc - for Renal he was well informed about hearts, that is a good thing.
That is it with us. Hope all is well with you and yours. Happy New Year!
Happy Birthday Chris - my biggest sister :)
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5 comments:
Glad you had a good Xmas :)
Fingers crossed they can solve the BP issues in one easy hit!
And YAY for correcting the doctors - if it wasn't for parents that did, he'd be wrong, and his student wouldn't know!
Happy New Year Suggs Family! Glad to hear from you! Keep us posted on Miles BP. Hope for a huge success for the walk.
Wow...
you had that DOWN!
Good for you girlie.
Terri
we are on the chd web ring and wanted to say hello. my izzy has a chd (couple of them) she has a blog too. we are in wa and are starting the washington chapter of the childrnes heart fundation. wa did not have any heart groups raising awareness so we are working on changing that. I read that your part of a group and was wondering if you had some fundraising ideas that might help our group get started. I hope your son is doing well he is cute:)
wyndi and izzy PHACES syndrome
IAA VSD MPV HB
So did you give up on Blogger...
only with CarePages??
Just stopping by.
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