"Doh Hop!"

This is a very special post just for Aunt Christy!!!

Sean's whole family went to TCU (Go Frogs!). His mom, his dad, his sister (Christy), his uncles Bobby and Collins, his cousins....and so on. Very purple family! Although Sean went to the Art Institute, we root for the Horned Frogs too. I think we would be exiled from the family if we didn't!

One of the first things that both of my children have now learned to say is "Go Frogs!" Riley would say it and even do the hand 'frog' thing, and now Miles just said it on Sunday. TCU was playing football and Sean said "Go Frogs!" so in turn on his own Miles said, "Doh Hop!" We had to call Aunt Christy and tell her right away! Now he says it everyday.

We love you Aunt Christy! :)

Uneventful Weekend

Sometimes you just have to say...nothing is going on here. We have had a great weekend! Saturday we laid around the house until lunch time, then we packed up our swimming gear and went to a friends house to swim and eat dinner. Ms. Thuy made mac & cheese with tater tots for the kiddos, jello for dessert & she made pasta with Shrimp and pesto sauce for the grown ups. We had a great time and we just fell in love with their beautiful new home and community. Thanks Phi & Thuy for having us over :)


Sunday, we were a little late for church. Well, not late for the service but late for the congregational meeting before the service. See, Sean and I are deacons at out church, First Colony Christian Church in Sugar Land, TX. Since the congregation was to vote on our new budget, we should have been there on time (oops!). Anyway, budget didn't pass so there will be another meeting on Monday. On to the rest of the day...My friend Jan (Hi Jan!) called and said she was babysitting a beautiful little girl named Emma and wanted to come play. So we went to Memorial park and threw a football (Emma wasn't very good at throwing the football, she is 1 yr old...but she helped me see how big Miles is) and put the kids in the swings. I just love to get outside and get some exercise!!! That was fun. Every time Miles got the ball he would just chunk it behind him. You'd say, Miles throw me the ball! He'd say, No and throw it the other way! Silly kid!!!


Monday started off with us laying around in our jammies!!! (awesome) Then while Sean fired up the grill for his famous hamburgers, me and the kids went in the backyard to kick the soccer ball around. Miles did the same thing this day. "Miles, kick the ball to Mommy." "No." Then he would pick the ball up, run half way across the yard and throw the ball into the bouginvia, which is very thorny. Silly kid, but it was fun to chase the kids everywhere. So we had a good lazy lunch. In the evening we went to the park again, this time to wear the kids out :) We threw the frisbee and football. Then climbed on the playground until everyone was exhausted. We had loads of fun and I couldn't have asked for a better weekend with my boys! I am feeling very blessed these days!

btw...Riley had a fever tonight, 101.4, plus his tummy hurt and he had a headache. I hope he feels better tomorrow! We have got to get the sickness out of our house!!! It feels like these boys are just sick all the time! Miles woke up this morning with a barky cough! Tonight it sounds better but each cough has been followed up by a sneeze. And would you believe that the Cardiologist STILL has not called me back from the blue legs!!!! (I am a little ticked, he is really cute and all but not so cute that I won't find a new one! Well, he is really cute...I could let this one thing slide...)

Cool kid...

I had to add a picture. 

The Meyer Center for Developmental Pediatrics

Today Miles had his evaluation from the Meyer Center for Developmental Pediatrics at Texas Children's Hospital. We were late, about 20 minutes, but we got right in. We were on the waiting list for about 1 yr for the evaluation. I was so terrified that we would get there and they would say they couldn't see us because we were late. We saw Dr. Madduri (she isn't on the TCH website). We liked her, Miles liked her too. She said that Miles is at an 18 month level for his speech. She suggested that we get him tested by the public schools closer to his 3rd birthday to start services there. He is on level for just about everything else. She said absolutely no to Autism (we knew that) and that he may have issues later on with reading, reading comprehension, and essay writing. She also recommended that Miles have an MRI to make sure he doesn't have any damage from low/lack of oxygen from birth, or from when his shunt narrowed, or when he had his...whatever it was, when he stopped breathing and turned blue and needed rescue breaths but they swear it wasn't a tet spell...from that. I would like to see what the spot on the back of his head looks like where he had the pressure sore after his 2nd surgery.

Anyway...He did go to the ER on friday of last week. He is okay. That night he had a low fever, 99.5...then in no time it was 102.5. Dr. T says that 102.2 is the magic number. Plus, his heart rate went up, he was increasingly lethargic and not responding well. This happened in a matter of minutes. It really freaked us out, hence the ER. We got there at 9pm. He puked all over the lobby. We were seen in triage at 9:30 and then waited until 12:39 for a room, yes 12:39. When we got in the room, his temp was 102 still, they gave him more tylenol. His pulse ox goes down when he has a fever...does anyone elses kid do this? He is normally 97%-ish but when he had a fever it was 93-94%?? Anyway, his pulse ox stayed pretty steady, his heart rate was up a little bit. Normal for him is about 130-135 but when we got there it was 157. Still, the docs didn't seem concerned, hence the 4 hour wait. Although, I should say that we got in before a kid that came in on an ambulance. He had a seizure and was not breathing when EMS got there, but by the time he got to the ER he was fine...well not FINE, but you know what I mean. When we were #1 on the list, they were #12. I felt a little bad. Anyway, they checked his urine (because of the recent not going for 17 hrs and saying 'ow' when he pees), it was fine. They did a blood count and his white count was low--virus. I cannot tell you how much I hate to hear, "We think it is a virus." Because the next thing is, "Just watch him, if he gets worse, come back." No treatment, no nothing to make him feel better. But, he is over it now, I think. He has had no fever since Saturday. His sleeping is a little off. He has been waking up at 4:30 screaming and pointing to his chest (like he is pointing at himself, not his heart) and saying 'no mama.' He was doing this before the ER so it isn't just me, I think he says 'no dada' to Sean. If not, maybe it is just me :). btw...we were in the ER until 7:30am Saturday. Sean let me sleep in until noon (he is a good man!).

I have enjoyed my days off although three of them were spent at Texas Children's Hospital. Thursday, speech therapy, Friday/Saturday, ER, and today Tuesday, Meyer Center.

So next is Sept.7, Gastric Emptying Scan and on Oct 3, MRI (he has to be sedated for that one--regular sedation no CV anesthesia--woohoo). I plan to update before then, but we may not be that exciting for a while (thank God!)

btw...Riley's open house at school is tonight. He is doing a great job in Preschool! He is sad when we pick him up because he likes to stay and play :) He goes to Our Saviour Lutheran School

I hope everyone is having a very uneventful week :) ~Becky

My conundrum of a boy...

This is an old picture, but cute.

Miles and Riley were making Labor Day cards for their grandparents. Ya know, cause Hallmark hasn't come up with cards for this holiday, so we had to make own! They were finger painting and making a royal mess! Miles had his hand covered with red, yellow, blue, purple, green and brown, he looks at me with this oh so cute face and says "Boop!" I was very cute!

So in speech therapy today, Miles was to work on finishing words. He will say 'out' but it is 'ou' and he will say ball but it is 'ba.' Man, he did not like actually working instead of playing (and learning at the same time). He threw himself down on the floor and had a little fit. He eventually came around, after she put the matching (finishing the word) game away. He did try to say bounce, roll...a few others that are escaping me right now.

Anyway...more testing on the horizon for Mr. Miles. He up-chucks all the time. Well, he is a fine balance of erythromiacin and miralax so that he a. won't puke when he poops and b. will digest his food. The other day he had a snack at 3, took his erythromiacin at 5 and 'gave me' his 3 o'clock snack at 7:30 and again at 8:15. So...either the medicine isn't working or he isn't digesting his food. What he 'gave me' looked just like he had taken it off of his plate. It certainly didn't look like it had been sitting in acid in his stomach for the last 4 1/2 hours. His gastro, Dr. Krishna, suggested that Miles have a gastric empyting scan. So this has been scheduled for Sept 7 @ 9am. This will be lots of fun (I can't get it to stop underlining!) the test is in the nuclear medicine department at TX children's. It will take an hour and a half. He has to be strapped to a table for the whole deal while they take pictures of his food digesting. This is after he eats eggs, oatmeal or milk with the nuclear meds in it. I cannot imagine that this will be fun. We did this before when he was about 6 wks old. We found that he had pyloric stenosis and spasms of his pyloris. The next thing, if we aren't happy with the results of this GE scan, is an endoscopy. That is more sedation, more intubation, more tubes, more low pulse ox and more convincing nurses that his pulse ox really is okay - for him. I also may have to call his urologist...he held it the other day for 17 hours! Checked with the doc (not the normal doc, she is out on maternity leave---congrats Dr. T), she didn't seem concerned because he still had tears and sweat. Today, he keeps pointing to his pants and saying "ow." Then peed...alot...like through his pants, he hasn't done that in a while. Could we be having our first UTI? He has 'outgrown' his urinary reflux.

But as I sit here in my chair while he is trying to spin me in circles, saying "doh ma, doh woun" I am filled with such happiness just being his mommy :)

Sorry for all the technical words this time :) Oh, the other thing he did while he didn't pee for 17 hours, besides vomit 6 times and the last time was green, his legs turned a purpleish/blueish color while I was holding him. His head was on my shoulder, my hand on his back and bottom. The cardiologist hasn't called back yet, the pediatrician thought I should check with him. While the legs were colorful, his pulse ox was normal. It happened twice. When I set him down in the sitting position, they went back to pink. He must be wired funny because I would have thought it would have been the other way around. Again, the doc (not the normal doc) wasn't concerned...well, I can't go that far. She said she has no idea what could be wrong. She said check with his cardiologist, Dr. Justino and his gastro, Dr. Krishna. So, that is what I did.

btw...I am on a mini vacation! Until the 30th I am off work! Just me and Miles during the day and I get extra special time with both of my boys!